Emma Sutcliffe, SVP, Patient Insight and Solutions gives an overview of patient engagement, benefits of investing in patient engagement programmes and why elevating patient engagement should be an essential business spend for patient safety, support and societal gain.
Haemophilia is a lifelong genetic disorder characterised by excessive bleeding.(1) Despite the existence of treatments for haemophilia, the condition continues to have major impacts on quality of life, for example in the areas of pain (acute and chronic), joint mobility, and physical function.(1) To mark World Haemophilia Day on 17 April, Prime Patient partnered with sister agency HCD Economics, a consultancy specialising in haemophilia patient research, and haemophilia advocate Laurence Woollard to better understand the existing relationship between patients and industry and how meaningful improvements can be made to the lives of people living with haemophilia (PwH).
Prime Patient team up with Jess Duggan from the SynGAP Research Fund to better understand what this advocacy group wants Pharma to know this Developmental Disabilities Awareness Month.
Prime Patient collaborate with award-winning advocate Trishna Bharadia to explore how industry can better engage with people living with multiple sclerosis (PwMS) this MS Awareness Month.