Patient advocacy and engagement are important no matter the disease area, whether it’s a common condition or one that few have heard of. Following the recent celebration of Rare Disease Day, let’s take a closer look at patient engagement in rare mutation cancers.

Prime Global welcomes HCD Economics!
HCD Economics are an academically aligned organisation focusing on health economics and outcomes research (HEOR) and real-world evidence (RWE).
HCD will work closely with Prime Global’s highly experienced medical communications agencies and specialist consultancies, including market access consultancy, Prime Access, and patient engagement experts, Prime Patient, to deliver integrated evidence-led services.
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Patient engagement in rare mutation cancers
Prime Global 4 March, 2022 -
In the spirit of Rare Disease Day, which was celebrated on 28 February, we’re looking at the importance of patient engagement in lysosomal storage disorders (LSDs).
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Amplifying the Patient Voice in Rare Diseases
Prime Global 1 March, 2022Medical publishing is evolving beyond plain language summaries to provide insightful, patient-centred resources to change the course of pharmaceutical research for the better. For patients with rare diseases especially, this could be just what the doctor ordered, writes Olivia Kersey, Patient Engagement Strategist with Prime Patient.
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