Patient Insight Partnership with Xperiome.

Uncover insights into the entire patient journey and create truly patient-centric drug development and commercialisation programs

To produce medicines with more value and better outcomes, patient engagement and insight is vital. It’s the bedrock of the solutions and services we develop at Prime Global.

To supercharge our insight-driven and patient-centred services, we’ve come together with Xperiome to transform solutions and outcomes for patients with rare diseases.

Xperiome is a global healthtech company specialising in rare disease. It provides deep patient insights, from patient recorded outcomes (PROs) to real world evidence (RWE) and more, to deliver innovative new therapies faster and smarter for the pharmaceutical industry.

Xperiome helps us access patients with rare diseases through Raremark, their data-driven knowledge bank of the rare experience, which supports rare patients by providing a community to crowdsource wisdom, a library to catalogue the lived experience, and a matching engine to find research opportunities.

Xperiome has engaged patients and caregivers in many rare disease areas. Here are some of their most established areas:  

  • Adrenoleukodystrophy 
  • Cystic Fibrosis 
  • Haemophilia 
  • Idiopathic pulmonary fibrosis (IPF) 
  • Myasthenia Gravis 
  • Pouchitis 
  • Sanfilippo Syndrome (MPS III) 
  • Sickle Cell  
  • Urea Cycle Disorder 
  • Urea Cycle Disorder sub-population – Ornithine transcarbamylase (OTC) deficiency 

“By combining Xperiome’s cutting-edge technology with our 23 years of award-winning medical communications experience, we can deliver patient-centric services and solutions that improve outcomes for both pharma and, most importantly, patients.”

Graeme Peterson, Prime Global CEO

At the forefront of innovation in patient engagement.  

Focusing on the needs of patients is the key to powerful communications that make a tangible difference to patient outcomes. Our joint approach uncovers insights into the entire patient journey allowing the creation of truly patient-centric drug development and commercialisation programs.

We can bring together patients and researchers and insight informed services and solutions to improve lives. Our highly qualified scientific teams can work with Xperiome to access your rare patient populations; get in touch to find out how we can help you accelerate the development and reach of new treatments today.

With health technology review bodies focusing on the ‘real world’ impact on patients, their input is no longer a nice to have, it’s a must.

Get in touch to find out how we can help you integrate the patient voice into your value demonstration and access agenda for rare diseases.

Susie MarriottPatient Insight Partnership with Xperiome