Today we come together to support those affected by cancer.
U.S. National HIV Testing DayPrime Global 27 June, 2017
Today is U.S. National HIV Testing Day. However, HIV is a global issue. We want to help raise awareness of the importance of testing for HIV, to prevent the infection spreading and to ensure those affected get treatment as early as possible. We’ve written an article about the history and progression of HIV that looks at the principles and science behind HIV testing. Click here to find out more. Test Your Way. Do It Today. https://goo.gl/xTSReAread more >>
Duchenne muscular dystrophyAcheson Kerry 31 May, 2017
Duchenne muscular dystrophy is a devastating disease that we still don’t fully understand, and currently there is no cure. This article describes current and new treatment therapies as well as the many challenges scientists still face. https://lnkd.in/gYkEcuHread more >>
Upcoming Rare Disease Blog postsAcheson Kerry 28 February, 2017
In support of #RareDiseaseDay we are launching a series of blog posts to illustrate the length of time it takes for a child living with a rare disease to receive a diagnosis. The process will be reviewed, from the parent’s perspective looking at the initial symptoms and beyond. Follow the link to find out about Tom. https://onyx-notsorare.tumblr.com/ Stay tuned over the next couple of weeks to find out what happens. #notsoRARE Engel PA, Bagal S, Broback M, Boice N. Physician and patient perceptions regarding physician training in rare diseases: The need for stronger educational initiatives for physicians.
Journal of Rare Disorders, 2013; 1(2): 1-15.read more >>