Haemophilia is a lifelong genetic disorder characterised by excessive bleeding.(1) Despite the existence of treatments for haemophilia, the condition continues to have major impacts on quality of life, for example in the areas of pain (acute and chronic), joint mobility, and physical function.(1) To mark World Haemophilia Day on 17 April, Prime Patient partnered with sister agency HCD Economics, a consultancy specialising in haemophilia patient research, and haemophilia advocate Laurence Woollard to better understand the existing relationship between patients and industry and how meaningful improvements can be made to the lives of people living with haemophilia (PwH).
Patient advocacy and engagement are important no matter the disease area, whether it’s a common condition or one that few have heard of. Following the recent celebration of Rare Disease Day, let’s take a closer look at patient engagement in rare mutation cancers.
In the spirit of Rare Disease Day, which was celebrated on 28 February, we’re looking at the importance of patient engagement in lysosomal storage disorders (LSDs).
Medical publishing is evolving beyond plain language summaries to provide insightful, patient-centred resources to change the course of pharmaceutical research for the better. For patients with rare diseases especially, this could be just what the doctor ordered, writes Olivia Kersey, Patient Engagement Strategist with Prime Patient.
Rare reflections: has the pandemic helped or hindered patient engagement and research for rare diseases?Prime Global 28 February, 2022
Emma Sutcliffe, SVP Patient Insights and Solutions, Prime Patient shares her reflections about whether the pandemic has helped or hindered patient engagement and research for rare diseases.
To mark Breast Cancer Awareness Month, we picked the brains of two of our experts! Farai Muldoon, Client Services Director, and Kiran Nandra, Scientific Team Lead, draw on their experience to give insight into how medical communications plays a role in breast cancer.read more >>
We’re talking all things vaccines for World Immunization Week! With a combined vaccine experience of nearly 20 years, Gaurav Kumar, VP Client Services, and Elien Moes, Director Scientific Services, are perfectly suited to answer all our questions about immunisation and medical communications. They share their work on vaccine education and development, and even touch on the opportunities they have had to witness worldwide vaccine cultures first-hand.read more >>
My name is José Antonio Barrientos and I’m a Client Services Director at Prime Global. In 2017 I was diagnosed with testicular cancer, and this post captures the week that changed my life.read more >>
It’s Movember! Movember was founded to improve awareness of men’s health worldwide, particularly around prostate cancer, testicular cancer and mental health.
Today, we’re focusing on testicular cancer.read more >>