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Haemophilia awareness: building trusted relationships between patients and industry

Haemophilia is a lifelong genetic disorder characterised by excessive bleeding.(1) Despite the existence of treatments for haemophilia, the condition continues to have major impacts on quality of life, for example in the areas of pain (acute and chronic), joint mobility, and physical function.(1) To mark World Haemophilia Day on 17 April, Prime Patient partnered with sister agency HCD Economics, a consultancy specialising in haemophilia patient research, and haemophilia advocate Laurence Woollard to better understand the existing relationship between patients and industry and how meaningful improvements can be made to the lives of people living with haemophilia (PwH).

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Prime GlobalHaemophilia awareness: building trusted relationships between patients and industry
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Patient engagement in rare mutation cancers

Patient advocacy and engagement are important no matter the disease area, whether it’s a common condition or one that few have heard of. Following the recent celebration of Rare Disease Day, let’s take a closer look at patient engagement in rare mutation cancers. 

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Prime GlobalPatient engagement in rare mutation cancers
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Amplifying the Patient Voice in Rare Diseases

Medical publishing is evolving beyond plain language summaries to provide insightful, patient-centred resources to change the course of pharmaceutical research for the better. For patients with rare diseases especially, this could be just what the doctor ordered, writes Olivia Kersey, Patient Engagement Strategist with Prime Patient.

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Prime GlobalAmplifying the Patient Voice in Rare Diseases
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Rare reflections: has the pandemic helped or hindered patient engagement and research for rare diseases?

Emma Sutcliffe, SVP Patient Insights and Solutions, Prime Patient shares her reflections about whether the pandemic has helped or hindered patient engagement and research for rare diseases.

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Prime GlobalRare reflections: has the pandemic helped or hindered patient engagement and research for rare diseases?
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An interview with Farai Muldoon and Kiran Nandra for Breast Cancer Awareness Month

To mark Breast Cancer Awareness Month, we picked the brains of two of our experts! Farai Muldoon, Client Services Director, and Kiran Nandra, Scientific Team Lead, draw on their experience to give insight into how medical communications plays a role in breast cancer.

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Prime GlobalAn interview with Farai Muldoon and Kiran Nandra for Breast Cancer Awareness Month
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World Immunization Week

We’re talking all things vaccines for World Immunization Week! With a combined vaccine experience of nearly 20 years, Gaurav Kumar, VP Client Services, and Elien Moes, Director Scientific Services, are perfectly suited to answer all our questions about immunisation and medical communications. They share their work on vaccine education and development, and even touch on the opportunities they have had to witness worldwide vaccine cultures first-hand.

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Prime GlobalWorld Immunization Week