We take a look at the value of patient data, how it can impact Pharma and to what extent it could benefit the industry.
For Pride Month 2022, Prime Patient investigate how Pharma can build stronger, more productive relationships with the LGBTQIA+ community
This Pride Month, Prime Patient takes a close look at the health inequity faced by the transgender community, and what we can do about it.
This month, the results of the 2021 PatientView corporate reputation survey were released. With insights from 240 US patient groups, a number of key findings were reported; here, we take a closer look.
On May 24th, the Prime Patient team was fortunate to have a spot at 2022’s Patient Centricity and Engagement Conference, hosted in London, England. With a veritable smorgasbord of topics up for discussion, we were spoiled for choice! Here we summarise some highlights from the day, kicking off with tips on strengthening patient advocacy collaboration.
Haemophilia is a lifelong genetic disorder characterised by excessive bleeding.(1) Despite the existence of treatments for haemophilia, the condition continues to have major impacts on quality of life, for example in the areas of pain (acute and chronic), joint mobility, and physical function.(1) To mark World Haemophilia Day on 17 April, Prime Patient partnered with sister agency HCD Economics, a consultancy specialising in haemophilia patient research, and haemophilia advocate Laurence Woollard to better understand the existing relationship between patients and industry and how meaningful improvements can be made to the lives of people living with haemophilia (PwH).
Patient advocacy and engagement are important no matter the disease area, whether it’s a common condition or one that few have heard of. Following the recent celebration of Rare Disease Day, let’s take a closer look at patient engagement in rare mutation cancers.
In the spirit of Rare Disease Day, which was celebrated on 28 February, we’re looking at the importance of patient engagement in lysosomal storage disorders (LSDs).
Medical publishing is evolving beyond plain language summaries to provide insightful, patient-centred resources to change the course of pharmaceutical research for the better. For patients with rare diseases especially, this could be just what the doctor ordered, writes Olivia Kersey, Patient Engagement Strategist with Prime Patient.
Rare reflections: has the pandemic helped or hindered patient engagement and research for rare diseases?Prime Global 28 February, 2022
Emma Sutcliffe, SVP Patient Insights and Solutions, Prime Patient shares her reflections about whether the pandemic has helped or hindered patient engagement and research for rare diseases.
We chat with Digital Health Consultant, Barnaby Poulton, about how technology can help amplify the patient voice.
This year’s ISMPP Europe meeting was action packed, with Prime Global sending 5 team members, presenting 5 posters, sharing 7 publication extenders, and moderating 2 roundtables! Here, we share some of our key highlights from the conference.read more >>
Olivia Kersey, Patient Engagement Strategist, outlines what we can learn from 2021 to optimise patient engagement strategy and implementation in 2022.
While there would be no such thing as the pharmaceutical industry without patients, it’s only in recent years that collaboration with patients has started to enter the mainstream. While 2021 was a good year for patient engagement, 2022 can be both bigger and better.
The Prime Patient team are proud to have had a poster accepted for presentation at the 2022 European meeting of ISMPP (International Society for Medical Publication Professionals), held virtually on 25-26 January. The poster, one of five accepted across Prime Global, presents the results of an internal survey that aimed to identify barriers and solutions to working with patient authors in medical publications.
It is hard to overstate the importance of social media in today’s healthcare ecosystem. Research has shown us that 74% of all internet users engage with social media, with a huge 80% of those people looking for health-related information or engaging with health-related topics.1 Social media has also become a place for people with chronic conditions to connect with each other, with research suggesting 40% of patients rely on social media to assess how others are dealing with and managing their condition.2read more >>
This World AIDS Day, Emma Sutcliffe, SVP Patient Insights and Solutions, takes a look at how far we’ve come and how far we’ve yet to go. Patient activism is a key factor in this progression; Emma discusses her experiences over a near-three-decade career in medical communications and working with patient organisations and how central the patient really is.
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In recognition of Lung Cancer Awareness Month, Olivia Kersey, Patient Engagement Strategist, illustrates current opportunities for the pharmaceutical industry to better meet lung cancer patients’ needs across clinical trials and beyond.
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Patient involvement in clinical trial design has evolved to provide opportunity for patients to be involved in medical publications. This evolution has allowed medical publications to gain invaluable patient perspectives on clinical research, by involving patients as authors in the development of plain language summaries and other, more traditional types of research publications1.read more >>
We were glad to attend the ISMPP West 2021 Meeting on October 21–22, the first in-person meeting in almost two years! The meeting focused on opportunities for connectivity, transparency, and inclusivity, and Jenny Blackham, VP Client Partnerships, gave us first-hand insight! Read below to learn more about the key themes at the conference.read more >>
What is health literacy and why is it important? Olivia Kersey, Patient Strategist, writes in Pharmaphorum’s October Deep Dive
Is Facebook the most effective means of reaching a wide audience when it comes to patient recruitment strategy? Ross Jackson, VP Patient Recruitment Services, shares his thoughts with The Huxley Morton podcast in a new video. He is, literally, the man who wrote the book on patient recruitment for clinical trials using Facebook ads! Listen to the podcast below.read more >>
Emma Sutcliffe, SVP, Patient Insight and Solutions gives an overview of patient engagement, benefits of investing in patient engagement programmes and why elevating patient engagement should be an essential business spend for patient safety, support and societal gain.read more >>
Our experts, Sue O’Leary, Senior Vice President Prime Access, Jenny Blackham, Vice President Client Partnerships and Head of Digital Solutions Michelle Collins recently led a webinar with the team at NetworkPharma and MedComms Networking. Discussing ‘the digital payer – fact or fiction?’ the webinar was a brilliant platform to discuss perspectives and share ideas about about evolving payer communications in the changing digital landscape.read more >>
The World Health Organisation defines health literacy as ‘the personal characteristics and social resources needed for individuals and communities to access, understand, appraise and use information and services to make decisions about health.’1 Where levels of health literacy are high, people are able to play an active role in improving and maintaining their own health, engage successfully with community action for health, and push governments to meet their responsibilities in addressing health and health equity.2read more >>
On Wednesday 1st September 2021, we launched the first-ever annual Patient Engagement Day – and what a day it was! Olivia Kersey, Patient Strategist, takes a look at some of the highlights.
Starting as a spontaneous brainwave from Emma Sutcliffe, our SVP, Patient Insights and Solutions, Patient Engagement Day 2021 involved a webinar with top industry thought leaders, video collaboration with three of our Patient Partners, a Twitter campaign, case study sharing, and the development of a toolkit to help other organisations to get involved. And that was just for the launch!read more >>
Plain language summaries, or PLS, are a concept that has indelibly changed our world of medical publications, likely forever. And yet, we still seem a world away from having PLS integrated fully and consistently into publications practices. In fact, it has taken several years of head-scratching to even align on a definition for PLS for publications, versus patient lay summaries of clinical trials, layperson summaries, and so on.read more >>