We take a look at the value of patient data, how it can impact Pharma and to what extent it could benefit the industry.
For Pride Month 2022, Prime Patient investigate how Pharma can build stronger, more productive relationships with the LGBTQIA+ community
This Pride Month, Prime Patient takes a close look at the health inequity faced by the transgender community, and what we can do about it.
The Corporate Reputation of Pharma in 2021
Prime Global 31 May, 2022This month, the results of the 2021 PatientView corporate reputation survey were released. With insights from 240 US patient groups, a number of key findings were reported; here, we take a closer look.
Not just a buzzword: how Pharma and advocacy leaders are effecting meaningful patient centricity
Prime Global 30 May, 2022On May 24th, the Prime Patient team was fortunate to have a spot at 2022’s Patient Centricity and Engagement Conference, hosted in London, England. With a veritable smorgasbord of topics up for discussion, we were spoiled for choice! Here we summarise some highlights from the day, kicking off with tips on strengthening patient advocacy collaboration.
Haemophilia awareness: building trusted relationships between patients and industry
Prime Global 19 April, 2022Haemophilia is a lifelong genetic disorder characterised by excessive bleeding.(1) Despite the existence of treatments for haemophilia, the condition continues to have major impacts on quality of life, for example in the areas of pain (acute and chronic), joint mobility, and physical function.(1) To mark World Haemophilia Day on 17 April, Prime Patient partnered with sister agency HCD Economics, a consultancy specialising in haemophilia patient research, and haemophilia advocate Laurence Woollard to better understand the existing relationship between patients and industry and how meaningful improvements can be made to the lives of people living with haemophilia (PwH).
Prime Patient team up with Jess Duggan from the SynGAP Research Fund to better understand what this advocacy group wants Pharma to know this Developmental Disabilities Awareness Month.
Prime Patient collaborate with award-winning advocate Trishna Bharadia to explore how industry can better engage with people living with multiple sclerosis (PwMS) this MS Awareness Month.
Patient engagement in rare mutation cancers
Prime Global 4 March, 2022Patient advocacy and engagement are important no matter the disease area, whether it’s a common condition or one that few have heard of. Following the recent celebration of Rare Disease Day, let’s take a closer look at patient engagement in rare mutation cancers.
In the spirit of Rare Disease Day, which was celebrated on 28 February, we’re looking at the importance of patient engagement in lysosomal storage disorders (LSDs).
Amplifying the Patient Voice in Rare Diseases
Prime Global 1 March, 2022Medical publishing is evolving beyond plain language summaries to provide insightful, patient-centred resources to change the course of pharmaceutical research for the better. For patients with rare diseases especially, this could be just what the doctor ordered, writes Olivia Kersey, Patient Engagement Strategist with Prime Patient.
Rare reflections: has the pandemic helped or hindered patient engagement and research for rare diseases?
Prime Global 28 February, 2022Emma Sutcliffe, SVP Patient Insights and Solutions, Prime Patient shares her reflections about whether the pandemic has helped or hindered patient engagement and research for rare diseases.
Amplifying the patient voice in healthcare through tech adoption
Prime Global 17 February, 2022We chat with Digital Health Consultant, Barnaby Poulton, about how technology can help amplify the patient voice.
Highlights from ISMPP Europe 2022
Prime Global 10 February, 2022This year’s ISMPP Europe meeting was action packed, with Prime Global sending 5 team members, presenting 5 posters, sharing 7 publication extenders, and moderating 2 roundtables! Here, we share some of our key highlights from the conference.
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How to make 2022 the best year yet for patient engagement
Prime Global 31 January, 2022Olivia Kersey, Patient Engagement Strategist, outlines what we can learn from 2021 to optimise patient engagement strategy and implementation in 2022.
While there would be no such thing as the pharmaceutical industry without patients, it’s only in recent years that collaboration with patients has started to enter the mainstream. While 2021 was a good year for patient engagement, 2022 can be both bigger and better.
Patient authorship survey poster presented at ISMPP 2022
Prime Global 26 January, 2022The Prime Patient team are proud to have had a poster accepted for presentation at the 2022 European meeting of ISMPP (International Society for Medical Publication Professionals), held virtually on 25-26 January. The poster, one of five accepted across Prime Global, presents the results of an internal survey that aimed to identify barriers and solutions to working with patient authors in medical publications.
Creating an effective patient engagement set of practices that is enduring and future-proof
Prime Global 23 December, 2021What’s next for different disciplines of patient engagement in 2022? Find out more with Emma Sutcliffe, Jon Hoggard, Olivia K, and Ross Jackson. We are committed to providing Voice to Value practices that are egalitarian and enduring.
Social media in patient engagement
Prime Global 17 December, 2021It is hard to overstate the importance of social media in today’s healthcare ecosystem. Research has shown us that 74% of all internet users engage with social media, with a huge 80% of those people looking for health-related information or engaging with health-related topics.1 Social media has also become a place for people with chronic conditions to connect with each other, with research suggesting 40% of patients rely on social media to assess how others are dealing with and managing their condition.2
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People living with HIV: 40 years of patient activism
Prime Global 1 December, 2021This World AIDS Day, Emma Sutcliffe, SVP Patient Insights and Solutions, takes a look at how far we’ve come and how far we’ve yet to go. Patient activism is a key factor in this progression; Emma discusses her experiences over a near-three-decade career in medical communications and working with patient organisations and how central the patient really is.
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How can we make lung cancer trials more patient-centric?
Prime Global 22 November, 2021In recognition of Lung Cancer Awareness Month, Olivia Kersey, Patient Engagement Strategist, illustrates current opportunities for the pharmaceutical industry to better meet lung cancer patients’ needs across clinical trials and beyond.
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Your guide to patient authorship
Prime Global 17 November, 2021Patient involvement in clinical trial design has evolved to provide opportunity for patients to be involved in medical publications. This evolution has allowed medical publications to gain invaluable patient perspectives on clinical research, by involving patients as authors in the development of plain language summaries and other, more traditional types of research publications1.
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Key Themes from ISMPP West 2021
Prime Global 15 November, 2021We were glad to attend the ISMPP West 2021 Meeting on October 21–22, the first in-person meeting in almost two years! The meeting focused on opportunities for connectivity, transparency, and inclusivity, and Jenny Blackham, VP Client Partnerships, gave us first-hand insight! Read below to learn more about the key themes at the conference.
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Because so many people see Facebook ads, you can expect at least a few negative or other problematic comments. Even though you do not author such comments, viewers will associate them with your study. Ross Jackson, VP Patient Recruitment Services, discusses how to handle such comments.
Health literacy for the intellectually disabled: is pharma doing enough?
Prime Global 29 October, 2021What is health literacy and why is it important? Olivia Kersey, Patient Strategist, writes in Pharmaphorum’s October Deep Dive
Is Facebook the most effective means of reaching a wide audience when it comes to patient recruitment strategy? Ross Jackson, VP Patient Recruitment Services, shares his thoughts with The Huxley Morton podcast in a new video. He is, literally, the man who wrote the book on patient recruitment for clinical trials using Facebook ads! Listen to the podcast below.
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Emma Sutcliffe, SVP, Patient Insight and Solutions gives an overview of patient engagement, benefits of investing in patient engagement programmes and why elevating patient engagement should be an essential business spend for patient safety, support and societal gain.
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The Digital Payer: Fact or Fiction?
Prime Global 21 October, 2021Our experts, Sue O’Leary, Senior Vice President Prime Access, Jenny Blackham, Vice President Client Partnerships and Head of Digital Solutions Michelle Collins recently led a webinar with the team at NetworkPharma and MedComms Networking. Discussing ‘the digital payer – fact or fiction?’ the webinar was a brilliant platform to discuss perspectives and share ideas about about evolving payer communications in the changing digital landscape.
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Health literacy in action
Prime Global 20 October, 2021The World Health Organisation defines health literacy as ‘the personal characteristics and social resources needed for individuals and communities to access, understand, appraise and use information and services to make decisions about health.’1 Where levels of health literacy are high, people are able to play an active role in improving and maintaining their own health, engage successfully with community action for health, and push governments to meet their responsibilities in addressing health and health equity.2
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Patient Engagement Day 2021: the highlights!
Prime Global 27 September, 2021On Wednesday 1st September 2021, we launched the first-ever annual Patient Engagement Day – and what a day it was! Olivia Kersey, Patient Strategist, takes a look at some of the highlights.
Starting as a spontaneous brainwave from Emma Sutcliffe, our SVP, Patient Insights and Solutions, Patient Engagement Day 2021 involved a webinar with top industry thought leaders, video collaboration with three of our Patient Partners, a Twitter campaign, case study sharing, and the development of a toolkit to help other organisations to get involved. And that was just for the launch!
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What next for Plain Language Summaries?
Prime Global 24 September, 2021Plain language summaries, or PLS, are a concept that has indelibly changed our world of medical publications, likely forever. And yet, we still seem a world away from having PLS integrated fully and consistently into publications practices. In fact, it has taken several years of head-scratching to even align on a definition for PLS for publications, versus patient lay summaries of clinical trials, layperson summaries, and so on.
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